There is discussion these days about Rett Syndrome not falling under the autism spectrum. It does and if you are the parent of a special needs child you need to help keep it under the autism spectrum. It was research in the Rett gene that helped with cancer research and indications that autism itself may be part of the same gene pattern.
With money being slashed left and right, it is important to write your Congressional leaders to let them know that we need to have funding to help our kids and research with Rett Syndrome.
It seems that the squeakiest wheel gets the grease so please make your presence loud and known. Rett Syndrome girls can’t talk for themselves and we are their advocates. If we don’t look out for them, who will? Certainly not people who are screaming for money for their own agendas.
If we can take one tenth of a military budget for Rett research and care for our girls we wouldn’t have anything to complain about. Come on, NIMH, keep Rett Syndrome under the autism spectrum.
Also, please note that President Obama supports In Home Support Services and any attempts to cut funding would be illegal at the Federal level. Make your voices known and loudly.
If you give or receive IHSS please do what you can to join the meetings and protests that are taking place. I don’t normally go out on advocating things (well, that isn’t true, is it readers?) but this is defintely a good and worthwhile cause as well.
The cost for taking care of special needs isn’t cheap and the alternative for people taking care of the people at home would be to institutionalize them (more money) or to let them walk the streets. For the more wild and aggressive behavior of some patrons that is an invitation for disaster and problems. If slight noises set some sensitive special needs people off, isn’t it better to have them cared for in a quiet, comforting environment?
Have a good weekend people.
May 16 2009
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Part of all the proceeds from the sales of that book go to Rett Syndrome research. One girl is born with Rett Syndrome worldwide every fifteen minutes. My daughter Arianna has Rett Syndrome and we are working to do all we can to make her life easier and find a cure in her lifetime. Boys born with the Rett gene generally die at birth.
Kim Isaac Greenblatt
Rett Syndrome Autism Spectrum and Business
