Posts Tagged ‘Muscular Dystrophy’

Tropic Thunder Timothy Shriver, Chairman of Special Olympics and boycotts

Tuesday, August 12th, 2008

In the Rett Syndrome community as well as in other special needs communities, there is some buzz about Timothy Shriver’s op ed piece in the Washington Post.  Evidently in the upcoming film, Tropic Thunder, there will be exchanges where the actors talk about playing characters who have special needs and are called “retarded”.

Not having seen the movie nor read the script, I cannot say myself what is being said but I can say one thing.  It looks like there may be some decision to boycott the film by the National Down Syndrome Congress and the national ARC (if I have my information correct).  All politically correct heated debate put aside, how does this relate to business and being profitable?

Well, if enough groups get together to boycott a film, it won’t be seen.  It depends on the spending money of the groups as well as the total bad publicity – or perception of bad publicity that will be out there.   Remember the OJ book where he told how he might have killed his late wife?  

 In the previews, it shows Morton Downey Jr having undergone surgery to transform from a white man into a black man for acting.  Okay, was that a concession to also show how edgy and funny they are? I dunno yet. If this is part of the satire, I get it. That will help in the movie’s overall box office.

Readers of my blog know that I have an open mind and a sense of humor so I am going to refrain from saying anything until I see the movie myself.  I am not a hypocrite.  If it is funny, it is funny.

The problem is, I agree with Timothy Shriver that the movie is going after a group of people who can’t defend themselves.  I’ve had the same issue with Carlos Mencia.  Surprisingly, or maybe not so, I haven’t had this problem with South Park because they are truly equal opportunity offenders. 

I also don’t know what kind of agenda Mr. Shriver has and maybe he is mad because he didn’t get a shot at reviewing the movie. Again, I don’t know and it is beyond my paygrade, folks.

So, back to the business angle…

How much economic pull will this have on the movie if there is a boycott?  It is hard to tell because it may backfire and make the movie a big hit because it has been boycotted by all sorts of special needs groups.  People may go see it to see what the fuss was all about.  Remember, controversy gets people interested in seeing something.

If enough people don’t see it though or it dries up quickly, it maybe because it was a horrible movie, period. Maybe the satire is above people’s heads. I dunno.  Lately, when a lot of comedies are just over-packing their movie with lowest common denominator jokes hoping some will stick they are finding that people can get that stuff for free over the internet and they run away.  If the movie can generate $10 worth of laughs per person multiplied by 100 million people, with or without the special needs jokes it will be a hit, even if there is a boycott.

Stuff like this happens all the time. It use to be to become a hit in the United Kingdom you use to say something bad about the royal family to get banned from the radio and you would be a hit.

An interesting fact is that I was probably going to see the movie without all the attention being called to it. In the previews it looks like they are three clueless actors. In the roles they are playing you are expecting to hear nonsense come out of their mouths. My hope is that they don’t dwell on the special needs humor as one aspect of it.

Should we just ignore the protests and see what happens with this movie? You need to come to the decision yourself. As for me, I will see the movie for myself and make my own decisions afterwards.

Part of all my book proceeds go to research finding a cure for Rett Syndrom and reversal of symptoms.

Kim Greenblatt

Please feel free to spread the word, if you are a social site such as Technorati, http://technorati.com/.

Questions or comments? Let me know about them! Thanks for taking the time to visit and for more information or to get back to the beginning of the blog, go here.

You are reading from Kim Greenblatt’s blog, profitable on special needs, money and the Timothy Shriver op end piece about boycotting Tropic Thunder.

Special Needs Sensitivity and Business

Monday, August 11th, 2008

I’ve noticed at amusement parks and some places that for special needs people, there are certain hoops that a person has to jump through now to get passes for special access.  Some parks have modified their rides to be wheelchair friendly to the point where you can literally take your wheelchair on a rollercoaster. 

Some parks though have gotten pretty tight with granting access because so many jerks and lazy slobs have abused the special needs pass access.  Because somebody is tired they should NOT be given a wheelchair.  Sit down and rest.  If they actually have a documented condition, that is fine with me.  Bring a doctor’s note with you otherwise you are taking access away from my daughter and others like her.

I am tired of the Carlos Mencia (that isn’t even his real first name, by the way, he uses it to sound more Latino) nonsense about people expecting special needs people to say that others are either better than that.  His harping on special needs because they are an easy target is nonsense.  If he ever has a child or relative born with special needs he will sing a different tune.

To be fair, there are some special needs comics who use their disabilities as part of their routine.  More power to them I say.  For a lot of people who can’t speak to defend themselves, all they are asking for is a little bit of courtesy.

At one of the amusement parks in Southern California, we had people give us grief about Arianna trying to get a pass.  One look at my daughter and as gorgeous as she is you can see that she, due to her hang-wringing from Rett Syndrome has something going on.  The guy gave us the party line until we basically showed him the pass we had last time.  Sharren and I had gone to the park with our documentation in the past. 

Also, please tell all everybody that special needs chairs and access are there for special needs people first people.  Get your freaking baby strollers out of the way.  We had an instance where we were cut off by a family with a stroller.  Not cool. The amusement park employees wereon it and corrected the situation.  Kudos all around!

Our money is just as good as people’s money who don’t have special needs relatives.  I can just as easily find another venue where my wife, kids and relatives can go to spend more money.

Have any rants or bones to rattle about special needs and business? How about people who aren’t disabled using driving cards they shouldn’t?  Let me know your beefs here.

Part of all my book proceeds go to research finding a cure for Rett Syndrom and reversal of symptoms.

Kim Greenblatt

Questions or comments? Let me know about them! Thanks for taking the time to visit and for more information or to get back to the beginning of the blog, go here.

Special note: Effective immediately any comments to post over a week old may not be added. I may add them subject to editorial discretion. Just to let you know…

Kim Greenblatt, on his blog, profitable, talks about the recent breakdown in treatment of people with special needs because of people abusing the system and what people can do to change it. More at http://www.kimgreenblatt.com/wordpress.

Kim Greenblatt on being profitable if you have special needs people who need caring

Monday, August 4th, 2008

Let’s face it, you aren’t going to live forever.  Try as you might sooner or later (hopefully later) you will be out of this sphere of existance.  It is hard enough planning for your family and their needs as is but it is harder if you are caring for a special needs relative.

It is important that you have whatever insurance you can in place and current.  It is important that you have a guardian already in place to take care of your parent, child, grandchild, etc. in the event something happens to you.  You don’t want a judge to make an arbitrary decision as to who should be taking care of your special needs loved one.

Are you saving enough now?  I know, I know – money is tight, you may lose your job (maybe you aren’t working) but it is important to try and have enough cash stashed away. 

What about special long term considerations if something happens to you that prevents you from taking care of that person?  Costs for long term care rocket if you don’t plan for them early on and get insurance where you can for yourself.  The Federal Government allows great tax breaks if you are currently paying for Long Term Care insurance.

2008
For 2008, the maximum amount of qualified long-term care premiums you can include as medical expenses has increased. You can include qualified long-term care premiums, up to the amounts shown below, as medical expenses on Schedule A (Form 1040)

  • Age 40 or under – $310.
  • Age 41 to 50 – $580.
  • Age 51 to 60 – $1,150.
  • Age 61 to 70 – $3,080.
  • Age 71 or over – $3,850.

 Note. The limit is for each person.

Those amounts above are for premium payments and surprisingly, the deductions for the medical expenses are pretty close to what the premium payments are for the long term coverage.

Please make sure you talk to other special needs parents about setting up a trust fund.  You need something pretty bulletproof so any money that goes to your loved one is not going to be taxed or they might end up losing whatever other government benefits (like Medi-Cal, disability) that they are currently getting.

Please write your Congressmen (and women) as well as the Governors, and Presidential candidates.  We are in a rough situation right now where if you make any kind of money, any kind of funding that helps a lot of special needs people will be yanked.  Make your voices heard so that the people who can’t talk for themselves to get the special care and assistance that they need, get heard.  It is cliche to say that but it still is an effective cliche.

Make sure that you also trust the people that are taking care of your elderly or special needs charges on a daily basis.  A lot of people are in the health care field for the money and not for the calling to help others.  That is fine by me and they are entitled to make a profit as long as they do their job and do it well.  After all they are taking care of our daughters, sons, parents, grandparents, relatives and ultimately in some cases, us.

Please drop me a post as to what you might want to see tax wise or business wise in terms of special needs.  I have a daughter who has Rett Syndrome and I get where you are coming from. You don’t want to gamble if you can help it with something like this.

A portion of all my book sales from all my books goes to finding a cure for Rett Syndrome and research to make girls suffering with Rett Syndrome lives a little easier. Rett Syndrome affects a girl born every fifteen minutes. Most boys born with the Rett gene die at birth. Rett is not Tourette. That is a different syndrome.

Kim Greenblatt

Questions or comments? Let me know about them! Thanks for taking the time to visit and for more information or to get back to the beginning of the blog, go here.

Special Needs and Business

Monday, July 21st, 2008

A great market for people looking to start businesses is to cater to the special needs community.  If you google “special needs” you will see there are all sorts of products, items for caring, devices to help to different types of blood testing, analysis, you name it, there is something out there for it.

That tells me that there is a large market for products for people with special needs or their caregivers.  A great example is a portable pulley that can carry a person from a bed, to a table or chair, and then lift that person to into a tub or shower.  As caregivers get older, they may not have the upper body strength to lift their charges – or themselves for that matter.  Anything that can make caregivers lives easier and is relatively inexpensive can be a gold mine.

Please post your questions, comments, or any nifty devices for lifting people around  below.

Kim Greenblatt